Building the first Canadian national pediatric diabetes registry

Dr. Shazhan Amed and Dr. Elodie Portales-Casamar

Dr. Shazhan Amed and Dr. Elodie Portales-Casamar recently joined with 10 childhood diabetes centres across the nation to work on CAPACIty.

CAPACIty is co-funded by the Canadian Institutes of Health Research, JDRF and Diabetes Canada and works from a lens of equity, diversity and inclusion and prioritizes indicators of inequality, their strategies will stand to positively impact the most disadvantaged children and youth living with diabetes in Canada.

The CAPACIty registry aims to address Canada’s need for:

  • data reflecting everyday characteristics and lived experience of young people with diabetes, along with long-term health outcomes;
  • increased understanding about regional differences in diabetes care and how care might be improved; and
  • practical ways to use this data to improve care for kids, with the values of equity, diversity and inclusion informing each step.

“Once these needs are met, we will have a better understanding of what’s missing from the health care that pediatric diabetes patients currently receive,” said Dr. Amed, the nominated principal investigator for CAPACIty.

“Our goal is to provide more equitable diabetes care for children and youth in Canada, and ensure quality and consistency of care across the nation.”

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