A Retrospective Look at 43 Years of Fetal Alcohol Spectrum Disorder (FASD): How Did We Get Here From Where We Started?

Kenneth Lyons Jones, M.D.

Dr. Kenneth Lyons Jones is a world-renowned pediatrician, dysmorphologist and researcher in the field of birth defects. He is a Distinguished Professor of Pediatrics and Chief of the Division of Dysmorphology and Teratology in the Department of Pediatrics at UC San Diego. Dr. Jones is considered to be the father of Fetal Alcohol Syndrome (FAS); Dr. Jones together with Dr. David Smith at the University of Washington were the first to identify FAS and to name the disorder in the United States in 1973.

Over the years from 1973 when the Fetal Alcohol syndrome was first described to the present this disorder has evolved from a medical condition to what some people would suggest is a moral panic. In this presentation I will discuss some of the reasons for this evolution and will discuss some issues that are important now and will become more important in the future. Critical among these issues is that the Institute of Medicine of the National Academy of Sciences in 1996 determined that prenatal exposure to alcohol leads to a spectrum of defects. At one end of the spectrum is the fetal alcohol syndrome and at the other end of the spectrum is Alcohol Related Neurodevelopmental Disorder (ARND). I will discuss the neurobehavioral features that are diagnostic of ARND, which are clearly the most important issues facing affected children. It is important to note that for every one child that I see with full-blown FAS in my FASD Clinic, I see ten children with ARND. I will discuss the incredible lack of awareness of this disorder; and I will discuss the extent to which birth mothers of affected children in addition to their children are stigmatized not only by society as a whole but by the medical profession, a problem that must be addressed if we ever expect to prevent this disorder.

Event Details:

Date: Monday, April 16, 2018
Location: Room 2108 BCCHR
Time: 4:30 – 5:30 pm

Light refreshments will be provided