A Retrospective Look at 43 Years of Fetal Alcohol Spectrum Disorder (FASD): How Did We Get Here From Where We Started?
Kenneth Lyons Jones, M.D.
Dr. Kenneth Lyons Jones is a world-renowned pediatrician, dysmorphologist and researcher in the field of birth defects. He is a Distinguished Professor of Pediatrics and Chief of the Division of Dysmorphology and Teratology in the Department of Pediatrics at UC San Diego. Dr. Jones is considered to be the father of Fetal Alcohol Syndrome (FAS); Dr. Jones together with Dr. David Smith at the University of Washington were the first to identify FAS and to name the disorder in the United States in 1973.
Over the years from 1973 when the Fetal Alcohol syndrome was first described to the present this disorder has evolved from a medical condition to what some people would suggest is a moral panic. In this presentation I will discuss some of the reasons for this evolution and will discuss some issues that are important now and will become more important in the future. Critical among these issues is that the Institute of Medicine of the National Academy of Sciences in 1996 determined that prenatal exposure to alcohol leads to a spectrum of defects. At one end of the spectrum is the fetal alcohol syndrome and at the other end of the spectrum is Alcohol Related Neurodevelopmental Disorder (ARND). I will discuss the neurobehavioral features that are diagnostic of ARND, which are clearly the most important issues facing affected children. It is important to note that for every one child that I see with full-blown FAS in my FASD Clinic, I see ten children with ARND. I will discuss the incredible lack of awareness of this disorder; and I will discuss the extent to which birth mothers of affected children in addition to their children are stigmatized not only by society as a whole but by the medical profession, a problem that must be addressed if we ever expect to prevent this disorder.
Date: Monday, April 16, 2018
Location: Room 2108 BCCHR
Time: 4:30 – 5:30 pm
Light refreshments will be provided
To Julie on her retirement:
Dear Julie, You know you cannot avoid the poem I would write
I’ll keep it short but cannot let you go slipping off into the night.
It’s been an amazing privilege working with you all these years
From your colleagues and your patients, constant thanks for you I hear.
We are so thankful for your calm and your reassuring way
We are grateful for your willingness to come in and save the day.
We’re amazed by your memory and your incredible skill
You have a knowledge base for which many residents might kill.
We don’t know how you do it, doing so much and with such grace,
Each patient feels heard and seen, no matter what your pace.
But life doesn’t happen only between these hospital walls,
We know you love to hit the slopes when the mountain calls.
And when the sun begins to shine and there’s early morning light
You’ll be at Kits enjoying a swim to start the day off right.
We love to learn about new movies from hearing what you’ve seen
And about the moving music when to the opera you’ve been.
So sadly it’s time to say goodbye as you head off to distant land
Please send us your new email; we’ll keep it close at hand.
Thank you for all you’ve done for us and for all that we have shared
A very hearty thanks we send from the thousands for whom you’ve cared.
We are going to miss you more than you will know
We have a few small gifts for you to remember us when you go.
– With love and appreciation from your BCCH family
Canadian Paediatric Society Lifelong Learning in Paediatrics – Fall Course October 19-21, 2018, BANFF
Learn in the morning, enjoy free afternoons with family and friends!
Fascinating topics: Serious bacterial infections, proton pump inhibitor, Kawasaki disease, irritable bowel syndrome, probiotics, antibiotics, Lyme disease, ‘hot topic’ discussions and interactive, cased-based workshops.
Featured lecture: “New innovations in gene therapy” by Dr. Ronald Cohn, Toronto, Ont.
The event will be held at the Fairmont Banff Springs Hotel. Register today!
Drs. John Wu, Mumtaz Virji, Mark Chilvers and Sandesh Shivananda are the newest graduates from the Physician Leadership Program (PLP) at The Sauder School of Business
The objective of this innovative program is to deliver the leadership knowledge, behaviours, and skills that senior physicians need to effectively engage in the planning, delivery, and transformation of our health care system.
This program was created by collaboration between B.C. Health Authorities, B.C. Patient Safety Quality Council, UBC’s Sauder School of Business and the UBC Faculty of Medicine. Its interdisciplinary outlook ensures a system-wide, yet well-integrated, view of both the medical and management aspects required for excellence in health care leadership. [more]
RICHER was presented with the John McCreary Prize for Interdisciplinary Teamwork at the UBC Health Awards Reception earlier this year.
A number of our pediatric colleagues from BCCH and UBC faculty have been and continue to be deeply involved in the RICHER social pediatrics initiative.
RICHER is an important link for BCCH to the community of Vancouver and has enabled us to develop long standing relationships with multiple community agencies and families, be more responsive to the needs of adolescents presenting to the ED and provide a rich training and education environment for medical students, pediatric residents and others.
Image: The RICHER Interdisciplinary Health Care Team. Back Row (left to right): Eva Moore, Judy Lynam, Chris Loock, Kristina Pikksalu, Lorine Scott, Clea Bland, Tamera Stilwell, Jane Hailey, Natasha Prodan-Bhalla, Gwyn McIntosh, and Tram Nguyen. Front Row (left to right): Shazeen Suleman, Denise Hanson, Joan McNeil, Curren Warf, and Dzung Vo. Not pictured: Ashley Roberts, Mia Remington, Kelly Luu, Kelley Zwicker, Grace Yu, Myles Blank, Wingfield Rehmus, Kristina Stockley, Warda Toma and Janet Greenman.
Dr. Jaclyn Strauss, one of our current R3’s was awarded the International Abstract of Distinction for her resident research work entitled “Catheter Related Complication in Central Venous Catheters Locked with Taurolidine vs Ethanol in pediatric Patients with Intestinal Failure” at the American Society for Enteral and Parenteral Nutrition (ASPEN) in Las Vegas earlier this year. ASPEN is one of the largest and most prestigious nutrition conferences in North America.
Dr. Reid has been awarded $688,500 over 5 yrs from CIHR for his work Identifying infection-induced determinants of paediatric acute lymphoblastic leukaemia progression.
New research from the Faculty of Medicine and BC Children’s Hospital provides insight into how infections early in life may reduce the risk of leukemia, the most common type of childhood cancer. Dr. Reid found that when the immune system is exposed to infections during the pre-leukemic phase, the activated immune response may reduce the risk of leukemia developing. The receptors that recognize infections and initiate the immune response trigger the production of interferons, which attack both the infection and the abnormal BCP cells, reducing their ability to turn into cancer.
Dr. Gregor Reid is an Assistant Professor in the Division of Hematology, Oncology and BMT at the Department of Pediatrics.
Dr. Reid is also a Scientist with the Michael Cuccione Childhood Cancer Research Program at the BC Children’s Hospital Research Institute.
More about Dr. Reid’s work can be found here: https://bcchr.ca/our-research/researchers/results/Details/gregor-reid
Congratulations Dr. Reid!
Dr. Soren Gantt has been awarded a CIHR Project Grant of $1.1M over 5 yrs for his study “Viral determinants of natural human cytomegalovirus transmission.”
Cytomegalovirus is the most common congenital infection, and a major cause of birth defects worldwide.
This study will characterize the specific viral variants and modes of transmission between mothers and children, to guide the development of a vaccine to prevent CMV infection.
Dr. Soren Gantt is an Associate Professor in the Division of Infectious Diseases which is part of the Department of Pediatrics at UBC.
More about Dr. Gantt’s work can be found here: https://bcchr.ca/our-research/researchers/results/Details/soren-gantt
Congratulations to Dr. Gantt!
The 7th Conference on Recent Advances in the Prevention and Treatment of Childhood and Adolescent Obesity – Beyond the Clinic
October 25-17, 2018
The Westin Calgary, AB, Canada
CALL FOR ABSTRACTS!
This conference brings together an interdisciplinary group of professionals working in the field of childhood and adolescent obesity. The 7th conference will focus on a range of topics that impact the prevention and treatment of obesity beyond the clinic setting, considering the broader social and environmental factors that influence the health of children, adolescents, and families. This multi-theme meeting will explore the role that health care professionals can play in promoting healthy strategies within the greater community to enhance the well-being of children and adolescents living with obesity. Specifically, the conference will showcase examples of successful collaborations that span diverse settings, including the health care system, government, schools, and community at-large.
For more information, please visit the website at http://interprofessional.ubc.ca/initiatives/obesity2018/
Email firstname.lastname@example.org to get on an enquiry list for updates.
Bringing the benefits of genomics and precision medicine to BC kids
BC Children’s Hospital’s role as a national leader in the field of pediatric precision health was highlighted this week with the announcement of the result of Genome Canada’s 2017 Large-Scale Applied Research Project (LSARP) competition. [MORE]
15th Annual Pediatric Emergency Medicine update event taking place May 4th – 5th at UBC Robson Square
Registration is now open for the popular annual Pediatric Emergency Medicine Update!
15th Annual Pediatric Emergency Medicine Update
May 4-5 (Fri-Sat) |UBC Robson Square| Vancouver BC
Target audience: pediatricians, emergency physicians, family physicians, allied health professionals & residents
Up to 12.5 MOC Section 1 credits/ Mainpro+
Program Content: https://ubccpd.ca/course/PedER2018#agenda
- New and Improved: Practice Altering Articles | Dr. Ran Goldman
- Greatest Hits: Update on Pediatric Trauma | Dr. Gen Ernst
- At a Loss: Managing the Child with an Eating Disorder | Dr. Tara Tandan
- Baby Driver: Pediatric Transport Considerations | Dr. Arthur Cogswell
May 3 (Thu)
Requirement: successful previous completion of PALS or APLS course suggested. Only for physicians who are routinely involved in the care of critically ill or injured children.
Up to 7.5 MOC Section 3 credits or 15.0 Mainpro+ credits (2cr/hr)
Max: 24 participants
FOR MORE INFORMATION:
Division of Continuing Professional Development
UBC Faculty of Medicine
VGH JPPN 3300, 910 W 10th Ave, Vancouver BC V5Z 1M9
T 604.875.5101 | F 604.875.5078
ubccpd.ca | @UBCCPD | Facebook | LinkedIn
What do you know about concussions?
Dr. Shelina Babul’s cattonline contains courses and information on recognition, treatment, and management of concussion.
Parents, coaches, health care providers, and school professionals can now access the latest information on concussions on the refreshed Concussion Awareness Training Tool (CATT) website.
The three toolkits—CATT for Medical Professionals, CATT for Parents, Players, and Coaches, and CATT for School Professionals—have been combined into one website, which contains more information about concussions, new pages for the e-learning courses, a section for latest news, and more.
Led by Dr. Shelina Babul, Clinical Associate Professor at UBC’s Department of Pediatrics and Associate Director/Sports Injury Specialist with the BC Injury Research and Prevention Unit at BC Children’s Hospital, CATT first launched their course for medical professionals in 2013, and added additional courses for coaches, parents of players, and school professionals shortly after.
Dr. Babul and her team have also refreshed the look and functionality of the SCAT5 and Child SCAT5 tools for use by medical and licensed health care professionals for use in office or on any desktop, tablet, or smartphone.
CATT is based upon the established principles of the Consensus Statement on Concussion in Sport. The 2017 Concussion in Sport Group (CISG) Consensus Statement builds on the principles outlined in previous concussion statements and aims to develop better understanding of sport-related concussion. The e-learning module for medical professionals will be updated to reflect the new standards by Spring 2018, with the others to follow.
Users can also access the latest concussion information on CATT’s Twitter or Facebook pages. The team would like to extend a special thanks to the team at SIOLab for their diligent and meticulous work.
Visit the new cattonline.com today.
Dr. Shelina Babul, PhD
Associate Director, Sports Injury Specialist I BC Injury Research & Prevention Unit I BC Children’s Hospital
Director I CHIRPP I BC Children’s Hospital
Clinical Associate Professor I Department of Pediatrics I UBC
Investigator I BC Children’s Hospital
Investigator I Djavad Mowafaghian Center for Brain Health, UBC
The RICHER* Social Pediatrics Initiative has been selected as the 2017 winner of the John F. McCreary Prize which recognizes and promotes interprofessional teamwork in the health and human service professions.
The award will be handed out the UBC Health Annual Awards reception in February at UBC.
*Responsive, Intersectoral-Interdisciplinary Child-Community, Health, Education and Research
Congratulations Dr. Loock and the RICHER Team!
Drs. Shazan Ahmed, Kendall Ho and Matthias Gorges are the recipients of $200,000 from a CIHR grant to support the development of Live 5-2-1-0. Live 5-2-1-0 is an evidence-based message promoting four simple guidelines for raising healthy children. Through the Live 5-2-1-0 message, SCOPE is supporting communities as they take action across all sectors to build healthy environments for children.
They plan on piloting their new app both in the outpatient clinic setting and in schools with the assistance of Tactica a specialist in making eHealth Apps.
For more information:
Congratulations Dr. Ahmed!
Congratulations to Dr. Lavoie and his team for their mobile phone app to improve the diagnosis of sepsis in infants in Malawi. Dr. Lavoie’s project is one of 20 Canadian projects that have won funding through Grand Challenges Competition, which is awarding $2 million to Canadian innovators with ideas that address issues of child and maternal health.
The app is low-cost, easy-to-use, and based on specialized blood tests, to assist health care workers and improve the early diagnosis of neonatal sepsis. Over the next 18 months, they will survey 500 infants presenting with a clinical suspicion of sepsis at the Kamuzu Central Hospital in Malawi, in sub-Saharan Africa. They will collect medical information about their conditions, and their cardiopulmonary stability at the time of initial presentation to the hospital. The use of special personalized blood test done at the BC Children’s Hospital Research Institute will allow a more accurate diagnosis of infection, which will be essential to develop ways to predict infants at high risk of sepsis.
- Pascal Lavoie, MD PhD FRCPC; Neonatologist, BC Women’s Hospital; Clinician-Scientist, BC Children’s Hospital Research Institute; Associate Professor of Pediatrics, University of British Columbia
- Msandeni Chiume-Chiphaliwali, MBBS, MSc Trop Paeds (UK), FcPeads ( SA) Head of Paediatrics and child health , Kamuzu Central Hospital, Malawi.P.O Box 149, Lilongwe Malawi
- Norman Lufesi, Acute Respiratory Infections Control Manager, Community Health Sciences Unit, P/Bag 65 Lilongwe, Malawi
- Niranjan “Tex” Kissoon, MBBS, MCCM, FRCP(C), FAAP, FACPE; UBC & BC Children’s Hospital Professor in Critical Care – Global Child Health; Department of Pediatrics and Emergency Medicine, UBC; Clinical Investigator, Child and Family Research Institute
- Mark Ansermino, MBBCH, MMed, MSc (Informatics), FFA (SA), FRCPC; Professor, Department of Anesthesia, Pharmacology and Therapeutics, University of British Columbia; Director, Centre for International Child Health, BC Children’s Hospital – Mobile technology.
- Matthew Wiens, PhD, Clinical Instructor, Bertram Hoffmeister Postdoctoral Fellow, University of British Columbia
- Guy Dumont, Dipl Ing, PhD, P Eng; Professor, Department of Electrical and Computer Engineering, Faculty of Applied Science, University of British Columbia
- Constantin Popescu, MD MSc, FRPCP, FAAP; Neonatologist, PhD Student, Experimental Medicine Program, UBC/BC Children’s Hospital Research Institute
- Jennifer Claydon, BSc, MSc; Study Coordinator, UBC/BC Children’s Hospital Research Institute
Dr. Lori Tucker is the recipient of the 2017 Dr. Parminder Singh Award from the BC Pediatric Society. Dr. Tucker is an Investigator at BC Children’s Hospital and Clinical Professor, Division of Rheumatology, Department of Pediatrics, University of British Columbia.
The award comes with a $1000 cheque which was presented on Nov 3 2017.
Congratulations Dr. Tucker!
Dr. Kirk Schultz is the recipient of the 2017 Dr. Judith Hall Award from the BC Pediatric Society. Dr. Schultz is the Director, Michael Cuccione Childhood Cancer Research Program, Co-Lead, Childhood Cancer & Blood Research Group, and Professor, Division of Hematology and Oncology, Department of Pediatrics, University of British Columbia.
The award comes with a $500 cheque which will be presented to the charity of Dr. Schultz’s choice.
Congratulations Dr. Schultz!
Dr. Ronsley is 1 of 3 trainees awarded the Dr. John Dupré Award. The Resident Clinical Case/Research Project Poster Award includes a $500 honoraria and certificate awarded to trainees who have presented the highest ranked oral or poster clinical research projects or resident poster clinical vignettes at the CSEM (Canadian Society of Endocrinology & Metabolism) Annual Professional Conference in Edmonton Nov 1-4 2017.
Rebecca was given the award for her poster entitled: Adherence to a Pediatric Diabetic Ketoacidosis Protocol in Children Presenting to a Tertiary Care Hospital.
Congratulations to Rebecca!
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